Thursday, October 13, 2005

Some information for those that need it

Oesophageal Cancer

In case people have not yet realised this, all of us who suffer from this disease had to learn about it, about treatments and about the odds of survival.

I welcome visitors to this web site and encourage people with similar illnesses to discuss their situation.

The Ivor Lewis Method

http://www.vh.org/adult/provider/surgery/EsophagealCarcinoma/12E.html

http://www.rcsed.ac.uk/journal/vol45_5/4550006.htm

http://www.vesalius.com/graphics/archive/archtn.asp?VID=773&nrVID=772

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=10075357&dopt=Abstract

Definitely NOT for the squeamish

P. S. you will need a medical dictionary for some of the words. After all my degrees I still have no idea what some of them mean.

One of the options for assisting people with this form of disease and its consequences is to have a place in which people can discuss their own situation, ask their questions and obtain information from others who are in the same boat.

There is such a site in the USA which is called the EC Café at

http://www.eccafe.org/

Within the ACT there is also a wonderful site which presents a one stop shop for cancer sufferers and this at:
http://www.hotkey.net.au/~string/listing.htm

Try it you will find it useful

There is NATIONAL AUSTRALIAN STUDY of Oesophageal Cancer underway

ASK YOUR DOCTOR about whether you can and/or should participate.

You can find out more at :

http://www.qimr.edu.au/research/labs/adeleg/

http://www.qimr.edu.au/research/labs/adeleg/barrets.html

and especially at:

http://www.acs.qimr.edu.au/menu/faq.html this URL providing information for participants!

http://www.acs.qimr.edu.au/menu/oes/index.html

In addition to the above, there is also information about clinical trials in the USA which can be located at:

http://www.nci.nih.gov/Search/SearchClinicalTrialsAdvanced.aspx

NOTE:
To use this site it is necessary to have an idea of how to use a search engine and to know the stage of the disease that you are looking for.

Chemo Therapy

There is a web site in the UK that is helpful in providing information about chemo therapy substances:

http://www.cancerbacup.org.uk/Treatments/Chemotherapy/Individualchemotherapydrugs/

The specific site for 5FU is at:

http://www.cancerbacup.org.uk/Treatments/Chemotherapy/Individualchemotherapydrugs/Fluorouracil

I hope this is of assistance to people.

No comments: