Tuesday, March 31, 2009

I'm Back

At least I am back briefly, to write about what has been happening to me recently, that is in the last month or so. I will try and refrain from being boring, so sit back and enjoy the ride.

As my readers will know, my right hand has been made virtually inactive by some sort of paralysis that appears to have been the result of the removal of a piece of cancerous tissue under the right shoulder which also required the cutting of some major nerves. there are technical names for all of this and I am delighted that my doctors know these names and can pronounce them. It really is to their credit. Suffice it to say that along with a sudden and I have say unexpected paralysis, has now come some quite incredible levels of pain. Since we have discussed these before as well, I will not go back and explore them apart from saying that the doctors and I had hoped to have the pain under control with a regimen of drugs applied in various dosages at various times during the 24 hour period that constitutes a day.

It has not been working as well as expected. Dosages have increased and times for taking the drugs have increased from three times a day to four times a day. In spite of all this, the pain has returned, often with greater ferocity than previously. Just yesterday when I sought an emergency appointment with my main pain doctor it happened to be set at a time that was 30 minutes to the time when my medications were due. On the way to the appointment, I felt strong but endurable levels of pain which built and built in intensity to the point that when the doctor and I were meeting, my breathing was through the mouth, in rapid gasping swallows of air in between pain on three levels, background pain, pain along the nerves still left working in my right hand and occasional shooting pain - pulses of what feel like violent electric jolts of pain whose frequency cannot be anticipated, controlled or managed in any way. Together these pains created a situation in which my doctor called for a nurse to provide me with a "breakthrough" shot of a new type of pain control medication. Suffice it to say that this also took some time to work its way into the system, but eventually left just the background levels of pain in situ. These are now "normal" and what I have managed to get used to.

Anyway, to get past this moment in time, we now have some medication that can be used to provide breakthrough pain control and provided that we use this well I should once again, hopefully, be able to manage the pain that appears to be ever present.

I am not sure how this will affect my ability to be available on line or indeed in person to those of my readers who have been kind enough to follow this saga and visit occasionally. I will not mention some of the other issues we have been having, perhaps it will suffice if I let you know that many of the drugs I have been placed on have certain impact on the bowels, none of them pleasant.

I will try and live up to my obligation to write to this blog as often as I can, but to tell the truth, my heart's not really in it - at least not a daily blast. There is nothing to say. Each day is much like the one before it and so on. However I will try. I will also try and communicate with friends more frequently as I am able, especially if this new drug regime works as well as expected.

So let's hear from you all - if any of you are still reading. I'm back and open for business, in at least a limited sort of way from today on.

2 comments:

Robert said...

i have been following both blogs pretty much daily, and have been worried that there haven't been as frequent updates.
thanks for keeping me (us) up to date. i am sorry that you have so much pain.
thinking of you and leanne a lot, and sending you healing thoughts.
btw, gail and i are heading to bpest on may 8-may 17. my mom will be there apr 20 to may 13, and now we can celebrate her 75th bday altogether.

much love,
robert

Kathy said...

Hi Peter,

I thought something must be going on, and you would communicate in some form once you were able.

It sounds like nothing at all pleasant, and I feel empathic towards your level of suffering. I hope that the new regime of pain relief helps at least as well as it has to date.

Love to you and Leanne,
Kathy